Or are morning easier on your fatigue? I just want to know what I have and how to deal with it. Come in later to work, and stay later. The evidence is mixed on the benefits of Reiki for fibromyalgia, but many people find relief and relaxation from the healing technique. If morning is your best time, focus on critical or pressing tasks then. The storm goes away but it will be back. How about Lyme, DDD of the spine, OA, treatment resistant depression, PTSD-MERCY!!! Hugs! The problem is, if they don't know the reason why fatigue or frequent medical appointments keep you away from your desk, they may mistakenly think you are a bad employee or an unreliable colleague. You don’t have to explain. It’s your choice and it’s personal to you and your FMS. This is my new constant companion called Fibromyalgia. Normal sounds sound too loud in my head. © 1996-2020 Everyday Health, Inc. Click here to subscribe to the Fibromyalgia News Today Newsletter! One of the major symptoms is widespread pain. After many years of panic, I now use a stick when I’m out. The only thing that currently helps me with my pain is CBD oil, Your email address will not be published. Bills must be paid. Fibromyalgia pain can also make you less productive while you're at work, according to a recent report. I’m so sorry for your suffering. In Columns, Through the Fog - A Column by Robin Dix. Ashamed to even be a part of what is called the human race…Bad day y’all. The heartening news is that today an estimated four to six million people with fibromyalgia remain in the workforce, evidence that on-the-job coping skills can help those with fibromyalgia stay active, productive, and healthy enough to keep a career on track and bank accounts solvent. Fibromyalgia is a chronic condition, so if your health just won't permit you to keep working at your current job, be proactive and start thinking about how you can transition to a position that's a better fit. Now they’re numb and tingly. For fatigue I take Provogil which is generic now but I have taken Nuvigil which is pricey, from the same co., btw. Life is expensive. He is the love of my life and always tells me that I am his. I hope it can help others if they fill the same.My pain is under control for the most part, it is the Fog that has me down so much of the time. It has finally been recognised as a pain inducing muscular condition which affects so many people, in fact for more than ten years I was told that I was suffering from arthritis. With these symptoms, it’s understandable that a person who suffers from fibromyalgia syndrome (FMS) might be forced to stay in bed or in their home for most of the day. When I get home from work I just feel so exhausted and fall asleep in the arm chair. It’s evening,when my fog is the worst. My inflammation levels are generally ok, all other blood tests within normal ranges. They want to hear that I’m better! I no longer have shoes I can wear, or socks, and barefoot doesn’t work either. By subscribing you agree to the Terms of Use and Privacy Policy. It does not provide medical advice, diagnosis or treatment. I have so much pain daily and take so many pain killers to just get through the day. You should let them know if you are distracted easily, and give them open desk hours where they can talk to you or send an email first. Even something as simple as putting the computer mouse in an easy-to-reach spot on your desk can make a big difference. People have said…you need to exercise….and one lady treats her Fibro with diet and the treadmil because pills cause her trouble. In our area the Rheumalogist does not handle fibro cases but refers them to your primary care physician. The repetitive movements most jobs require can spell trouble for someone with fibromyalgia. Know ahead of time what you will do if your fibromyalgia flares. We all endure one way or another but enduring is the name of the game. But sometimes the pain gets so bad that my reserve of “patience” or “tolerance” runs out. These guidelines include suggestions such as; allowing flexible work hours, allowing periodic rests, providing minimal distractions, and providing memory aids. Jayne, before I went to a Rheumalogist I knew the symptoms of Fibro and the Rheumalogist confirmed it. Sorry, you have Javascript Disabled! In answer to the question posed in the article though, I don’t know how to explain it to people. lol, Invisible illnesses don’t get you a seat on the bus! Fibromyalgia is just all in our minds…in a funk and I already know I am from and live on another planet…Fibro-Planet that does not even exist…yes, being sarcastic and cynical. While everyone reacts to this condition differently, certain coping strategies can help you make your workplace more fibromyalgia-friendly. They didn’t get the reduced tolerance to stressful situations though. What would that job look like? And don't forget to take periodic breaks, too. This one has been in full swing for five weeks and I keep getting tearful. I have also arthritis in my ankle plus rotator cuff problems which do prevent me from doing some the things that I could do unaided few years back. I still feel like a kid when I see a rainbow! Yet, to sleep anywhere near well at night I take 1/2 generic Ambien. I’m very sorry for your suffering. It's the same if you have fibromyalgia. Go with the flow. My past 6 months have been horrific! This letter is for you, my dear friend. It causes fatigue. I overheard her saying the reason she’s in the chair is fibro. My main areas of pain are in my neck, base of my skull, both shoulders, upper and lower back, … God I pray I learn from this wicked Fibromyalgia, so I can glorify you with my lessons I learn. make your workplace more fibromyalgia-friendly. Research suggests that this chronic pain disorder may be connected to digestive health. I literally have experienced every symptom listed anywhere, and some my doctor hasn’t heard of. Not your fault. Another great way to stay organized and keep your focus is to have a daily planner about what you need to accomplish each day. Study shows transcutaneous electrical nerve stimulation used over four weeks provides symptom relief. Rehearse a short speech you can use to explain to coworkers when you're having a "bad" day. I do well most of the time. Reiki for Fibromyalgia: Does It Actually Work? It’s important that you are aware of the temperature of the office or place you work, and dress accordingly. Not only is it important to be open with your boss and superiors, but it’s also highly recommended that you stay open with your co-workers about your illness. I also have been dx with severe carpal tunnel but don’t want surgery. Take a "full disclosure" approach instead. It works. The love of my life cheerfully makes me dinner after working all day (I fret because I know this is what I should be doing for him). Hi Mary Ann, If you’ve developed FMS while at your current position, it’s better to be open and honest with your boss or superiors about your illness. By the end of this time you should see patterns in your notes — which activities cause the greatest levels of discomfort, what time of day your pain is most acute, and which days of the week feel most stressful. The Ultimate Guide to Health and Happiness, High-Dose Biotin Fails MS Trial, Dashing Hopes, Over Half of American Adults With Advanced MS Experience Mistreatment by Caregiver, Survey Shows, Tippi Coronavirus: Tips for Living With COVID-19. Hi Robin, Thank you for your thoughts.I really enjoy your posts, and look forward to them.I think the “flu” analogy is the closest I can come to explaining our illness to someone who is interested in knowing about our illness.They are few, and far between.It helps, so much, to have the support and understanding of our fellow spoonies.Take care. I struggle with pain daily, I have no idea if I actually really have fibromyalgia, my gp thinks that I have fibro, and treats me and my symptoms as I have. Do your best and be yourself. And yes, I have read that there can be an Epstein-Barre connection. Keeping an open conversation with them will allow you to discuss how your feeling, and realize when you might be doing more harm at work by staying while ill. Jayne perhaps you could search for a different rheumatologist in your area. Many people who suffer from FMS are very sensitive to hot or cold temperatures. You need to These simple strategies can make working with fibromyalgia work for you. I finish my meal hoping just to keep it down. I don’t mention it. You can read more about these rights and how they apply to fibromyalgia in particular at the Job Accommodation Network.
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