“I intend to explore all avenues which will further our agenda of openness.”. We are a group of scientists, lawyers, entrepreneurs and individuals working to promote the removal of obstacles involving intellectual property in the fight against COVID-19. Every donation brings us closer to a fully funded research effort and the answers we all seek. Prefer to use Facebook for monthly or onetime giving?Check it out here: #MayMomentum Facebook, Open Medicine Foundation®29302 Laro Drive,  Agoura Hills, CA 91301 USAPhone: 650-242-8669, OMF is a non-profit 501(c)(3) organization. 271 (2007), https://papers.ssrn.com/sol3/papers.cfm?abstract_id=957939, Jorge L. Contreras, Patent Pledges, 47(3) Ariz. St. L.J. ME / CFS in body and brain, OMF is a non-profit 501(c)(3) organization. Jorge L. Contreras, A Market Reliance Theory for FRAND Commitments and Other Patent Pledges, 2015(2) Utah L. Rev. ELKHORN – The Open Arms Free Clinic in Elkhorn has begun a free COVID-19 testing service, making it the only complimentary test facility in the county at this time. Please visit #MayMomentum for more information. PLoS ONE 14(8): e0221411 (2019). The time is now to attract the kind of serious investment that will speed up our search for a cure and end these debilitating diseases. The US Centers for Disease Control and Prevention have estimated that COVID-19 case and hospitalization rates are at least 2.5 and 4.5 times higher, respectively, among Black, Hispanic, and Native American populations than among White populations. of Human Genetics, University of Utah School of Medicine, Research Fellow, Program on Information Justice and Intellectual Property, American University Washington College of Law. The centers and their working groups are building a repository of data using a series of innovative analytical techniques and multi-omics platforms (genomics, proteomics, metabolomics, transcriptomics). Recent articles Sign up for The Optimist newsletter Subscribe to The Optimist to get updates on the latest in global health, gender equality, education, and more. The app would be similar to UptoDate, which is used by clinicians around the world to quickly distill the latest medical research and aid in treatment decision making. Jorge L. Contreras, Patent Pledges, 47(3) Ariz. St. L.J. A global community of scientists and clinicians committed to fast-tracking ME/CFS research VISION Open Medicine Foundation (OMF) has brought together expert scientists and clinicians for a bold international collaborative research project coined “The End ME/CFS Project.” OMF’s goal is to help fund this project to develop a diagnostic tool, deliver treatments, and ultimately find a […] The four, OMF-established, ME / CFS Collaborative Research Centers have launched an international study of the possible conversion of COVID-19 patients to ME / CFS. The team is talking with deans of medical school and the Ministry of Education (MOE) to raise funds for the project. The COVID-19 epidemic will hit the most vulnerable people hardest. Firefighters and emergency medical workers in New York City were 15 times more likely to be infected during the first wave of the COVID-19 pandemic compared to … Photo of Roshan Karn speaking at an event. Roshan Kumar Karn puts in 16 to 18 hours, seven day a week, working at two hospitals in Nepal’s capital city of Kathmandu caring for the influx of patients with COVID-19. Performance & security by Cloudflare, Please complete the security check to access. The project is now led and stewarded by Creative Commons, the nonprofit that helps overcome legal obstacles to the sharing of knowledge and creativity to address the world’s pressing challenges. Breaking News OMF Funded Study: COVID-19 and ME / CFS Against the backdrop of COVID-19, Open Medicine Foundation (OMF) remains focused on finding the answers needed to win the fight against Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) and other chronic, complex diseases. • You may need to download version 2.0 now from the Chrome Web Store. 543-608 (2015), https://papers.ssrn.com/sol3/papers.cfm?abstract_id=2525947, Jorge L. Contreras, A Market Reliance Theory for FRAND Commitments and Other Patent Pledges, 2015(2) Utah L. Rev. Read the FAQ. We have raised over $28 Million from private donors, and facilitated and funded the establishment of four prestigious ME / CFS Collaborative Research Centers. American University Washington College of Law – Program on Information Justice and Intellectual Property, Standards-Essential Patents and FRAND Licensing, https://www.e-elgar.com/shop/gbp/patent-pledges-9781785362484.html, https://patentcommons.org/publications/OSDL_Whitepaper_Final_final_4-12-06.pdf, https://papers.ssrn.com/sol3/papers.cfm?abstract_id=957939, https://papers.ssrn.com/sol3/papers.cfm?abstract_id=2525947, https://papers.ssrn.com/sol3/papers.cfm?abstract_id=2309023, https://www.eff.org/document/hacking-patent-system-2016, https://papers.ssrn.com/sol3/papers.cfm?abstract_id=2753833, https://papers.ssrn.com/sol3/papers.cfm?abstract_id=3157572, https://papers.ssrn.com/sol3/papers.cfm?abstract_id=3466156, https://doi.org/10.1371/journal.pone.0221411, https://ieeexplore.ieee.org/document/9120047, https://creativecommons.org/share-your-work/public-domain/cc0/, https://www.wcl.american.edu/impact/initiatives-programs/pijip/impact/patent/. The pharmaceutical industry has failed to deliver in countries both rich and poor - for neglected diseases, for antibiotics, and for affordable cures generally. Jorge L. Contreras & Meredith Jacob, eds., Patent Pledges: Global Perspectives On Patent Law’s Private Ordering Frontier (Edward Elgar, 2017) (IPKat’s Best Patent Law Book of 2018). Mark M. Davis, PhDMike Snyder, PhDWenzhong Xiao, PhDCraig Heller, PhDLars Steinmetz, PhDFereshteh Jahaniani, PhDMohsen Nemat-Gorgani, PhDPeidong Shen, PhDAmit Saha, PhDEric Shaqfeh, PhDJuan Santiago, PhDGozde Durmus, PhDJulie WilhelmyWilliam Robinson, MDCurt Scharfe, MDDavid Kaufman, MD, Richard Smith, PhDJon Jacob, PhDWei-Jun Qian, PhD, Linda TannenbaumChristopher Armstrong, PhD, Ronald G. Tompkins, MD, ScDWenzhong Xiao, PhDDonna Felsenstein, MDJonathan Friedstat, MDDaniel Irimia, MD, PhDAmel Karaa, MDMichael VanElzakker, PhDH. Of the Open effort in Nepal, Karn says: “It’s a huge struggle, but I’m really optimistic. Our 2020 May Momentum campaign reminds us of the critical importance of staying focused, bold, and, most importantly, hopeful. Established to support the development of creative solutions that address the wide-ranging impacts of the COVID-19 pandemic, the Booz Allen Foundation Innovation Fund was open to … “Access to research should come free or with a minimal cost. “We are not sure when we are going back to normalcy, and we need to have access to information with the click of a button from anywhere.”. OMF’s score of 100 serves as an indicator of trust, demonstrating our longstanding commitment to ensuring accountability, transparency, and measures of financial health, including stability, efficiency and sustainability. Lydia Pallas Loren, Building a Reliable Semicommons of Creative Works: Enforcement of Creative Commons Licenses and Limited Abandonment of Copyright, 14 Geo. However, for some patients, their fatigue may fail to resolve or become even more profound over these initial six months and continue indefinitely, converting to ME / CFS. Now is a critical time in ME/CFS research. A vital part of The End ME/CFS Project is to financially support goal-directed research centers that work collaboratively with each other and the global research community of scientists and clinicians. In this current COVID-19 pandemic, it seems likely that COVID-19 may also be a trigger, and that many people will develop ME / CFS. New drug prices can exceed $80,000 annually and productivity in the pharmaceutical industry has been declining exponentially. In a significant percentage of patients, severe viral infection preceded their development of ME / CFS. At the heart of this effort is the leveraging of the strategic relationship between our four Collaborative Research Center (CRC) Directors. Working to contain this new disease, physicians are eager for the latest information on new protocols for COVID patients – as well as people battling other conditions. Creative Director and Communications Director, Creative Commons, Presidential Scholar and Professor, University of Utah S.J. OMF have set an aggressive goal to raise $20+ million per year from grants and donations. We will also continue to expand our efforts to raise the significant funding required to conduct this international study and to sustain the over thirty research and treatment projects currently underway at the four, OMF-funded CRCs. “The COVID pandemic has emphasized the importance of Open Access and Open Education more than ever,” Karn says. Harm reduction thinking, minimal police involvement, and the need to keep the price of medicine low—these are some lessons from HIV that we need for the COVID-19 response. “It’s a really difficult time. “With the emerging crisis of COVID-19, we believe that openness is more necessary than ever,” says Karn. William H. Neukom Professor of Law at Stanford Law School and the Director of the Stanford Law School Program in Law, Science & Technology. “With Open Medicine, our aim is to equip these people with the resources – diagnosis, treatment protocols, medicine for specific diagnoses – so that they don’t have to refer these low income group people to tertiary centers,” Karn says. The world is intensely focused on COVID-19 at the moment. In the coming months, we will share details about the study and its progress. • Mason L. Rev. The expected outcome is that some will develop ME / CFS, as many other viruses serve as triggers for the disease.

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